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According to "CNN"The parents, Edith LeMay and Sebastien Petellie, are in a race against time, so that they can sons The three with their sister, from seeing many places in the world, as long as they could see until now.
and lead the disease The gene known as retinitis pigmentosa leads to regression or loss of vision over time, while there is no effective treatment for it so far.
The couple, linked for 12 years, discovered, in shocking moments, that three of their sons suffer from… Symptoms The same, and it concerns 11-year-old daughter Mia, and brothers Leo and Laurent.
The mother acknowledges the state of disability in the face of the children’s illness, saying that the health disorder worsens over time, and there is no treatment at the present time to eliminate the disease completely or even curb its exacerbation.
The mother says bitterly that doctors do not know at the present time the frequency of visual decline in children, but it is expected and very likely that they will lose their sight completely in middle age.
The mother affirms her keenness to enrich the memory of her children so that they can see the most possible things before losing sight.
So far, the family visited sand dunes in Namibia, saw elephants in Botswana, rode balloons in Cappadocia, Turkey, and went to the caves of Zanzibar in Tanzania, in addition to another visit to Zambia.
The family is determined to visit other countries, such as Indonesia and countries in Southeast Asia, in order to learn about different cultures, but as permitted by the restrictions that are still imposed due to the Corona epidemic.
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According to “CNN”, the parents, Edith LeMay and Sebastien Petellii, are in a race against time, so that he can sons The three with their sister, from seeing many places in the world, as long as they could see until now.
and lead the disease The gene known as retinitis pigmentosa leads to regression or loss of vision over time, while there is no effective treatment for it so far.
The couple, linked for 12 years, discovered, in shocking moments, that three of their sons suffer from… Symptoms The same, and it concerns 11-year-old daughter Mia, and brothers Leo and Laurent.
The mother acknowledges the state of disability in the face of the children’s illness, saying that the health disorder worsens over time, and there is no treatment at the present time to eliminate the disease completely or even curb its exacerbation.
The mother says bitterly that doctors do not know at the present time the frequency of visual decline in children, but it is expected and very likely that they will lose their sight completely in middle age.
The mother affirms her keenness to enrich the memory of her children so that they can see the most possible things before losing sight.
So far, the family visited sand dunes in Namibia, saw elephants in Botswana, rode balloons in Cappadocia, Turkey, and went to the caves of Zanzibar in Tanzania, in addition to another visit to Zambia.
The family is determined to visit other countries, such as Indonesia and countries in Southeast Asia, in order to learn about different cultures, but as permitted by the restrictions that are still imposed due to the Corona epidemic.