“Only 10% of rare diseases have a dedicated treatment”

MAINTENANCE – Geneticist and pediatrician, the Pr Stanislas Lyonnet talks to us about the Imagine Institute, the first European center for research, care and education dedicated to genetic diseases, which he has been directing since 2016.

Geneticist and pediatrician, the Pr Since 2016, Stanislas Lyonnet has directed the Imagine Institute, Europe’s leading center for research, care and teaching dedicated to genetic diseases. This French flagship, the result of a public-private partnership, was designed in Paris in 2007 by renowned experts on the initiative of the Pr Claude Griscelli. In the line of sight, the ambition to accelerate research to provide answers to families affected by the tragedy of a rare disease.

LE FIGARO. – With its 19,000 m2and its 591 doctors and researchers, the Imagine Institute has significant resources to tackle rare diseases. Why is this mobilization necessary?

Pr Stanislas Lyonnet. – There is an apparent paradox with rare diseases. The term applies when less than one birth in two thousand is concerned, which is low. But collectively, it is a major health issue, because rare diseases affect 3 million people in France. We are far from the notion of rarity! It’s that these…

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