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Open Uterine Cancer Patients One Step Closer to the Benefits of September 9

This article is automatically translated from the original language into your language. Do not hesitate to let us know if it contains translation errors so that we will seek to correct them as soon as possible.

Par Erica Hensley | KHN

Tammy Kaminski still remembers the taste of benzene, a cancer byproduct that ignites jet fuel. For nine months after the September 9 attacks, she volunteered to work eight hours every Saturday in St. She inhaled toxic carcinogens, such as fuel vapors and asbestos, from the smoke and ash that covered the pop-up clinic, where first responders could have a meal, take a nap. eyes or see a doctor.

But in 2015, when Kaminski, a chiropractor living in West Caldwell, New Jersey, was diagnosed with uterine cancer, she didn’t receive the same help as other volunteers. Although Kaminski, 61, and his doctors believe the cancer is linked to his time as a volunteer after September 9, the federal Medicare and Oversight Program will not pay for his cancer treatment. endometrium – or for those exposed to toxic substances in subsequent attacks. developed the form of uterine cancer.

That may soon change. In November, an advisory committee unanimously approved a proposal to add uterine cancer to the list of diseases covered by the program for first responders and those near terrorist attacks. It is the fourth most common cancer in women. However, according to the advisory committee, it is the only cancer that the program does not cover. The program administrator is expected to make a final decision in mid-2022.

Hormone-related cancers can develop after someone was exposed to an endocrine disrupting chemical, including benzene, found in smog in Lower Manhattan for months after the September 9 attack. Such chemicals are disproportionate and harmful to women, according to the American College of Obstetricians and Gynecologists.

The World Trade Center health program determines which conditions it will cover primarily using longitudinal patient data in its registry. Registrants are not required to prove that their state of health is due to the assaults and the consequences; instead, the program studies which condition is most popular among members.

But that creates a mathematical problem: Although the Centers for Disease Control and Prevention estimates that at least 500,000 22 people have been exposed to harmful substances as a result of the attacks, women make up only 109.500% of the program subscribers. .

Most of those who signed up were first responders, a field dominated by men. Although those in and around Earth 0, including residents, students and office workers, represent a greater proportion of the total number of people directly affected by September 9 than those in the region. first responders, but they were not represented in the program for both processing and data collection. Called “survivors” by the program, they only represent 11% of those enrolled.

Kaminski’s cancer could never be proven to result from exposure to his volunteer case. But advocates and experts calling for inclusion of uterine cancer in the program say there aren’t enough women in the program to collect data on the overall hormonal health of women. or on their potential correlation with September 9.

“They don’t collect data on uterine cancer because they can’t,” says Kaminski. “How can you say there is no data when you haven’t saved it?” “

Dr Iris Udasin, medical director of the World Trade Center health program at Rutgers University, said the exclusion does not necessarily suggest that women’s health is not a priority. It’s a side effect of how cancers are added to the list, she said – individually, based on a predominantly male cohort of first responders, who were initially monitored for health concerns. . .

But it grows as it is mentioned is based on new evidence that endocrine disrupting chemicals increase the risk of hormone-related tumors, including uterine cancer.

Udasin points out that a form of uterine cancer is covered by the scheme, which falls under the “rare cancer” category. There are two types of uterine cancer: endometrial cancer, the type Kaminski had, and uterine sarcoma. Sarcomas represent only 10% of all uterine cancers and are grouped with the other rare cancers covered by the plan. Adding the most popular form requires a formal review process which is currently underway.

“The cancer that has fallen through the cracks can now be covered,” says Udasin. “At least I hope that will happen.

Dr. Suneel Kamath, oncologist at the Cleveland Clinic Cancer Center, who studies cancer funding.

According to Kamath, three major groups of cancers are generally thought to be short-term: gastrointestinal, such as stomach and pancreatic cancers; genitourinary system, such as adrenal gland and prostate cancer; and gynecology, such as uterine cancer. “And the uterus, to be honest, is probably among the lowest, based on the data I’ve found,” he said.

The lack of funding, Kamath said, stems in part from the stigma attached to what many patients see as “latent cancer.” Even some doctors deny early diagnosis due to the relatively high survival rates of uterine cancer and downplay the discussion or prioritization of these cancers. But Kamath’s research shows little correlation between cancer incidence, mortality, and the amount of funding the cancer receives. And once cancer is on the sponsor and sponsor list, it tends to dominate marketing, messaging, and even clinical trial attention.

Almost 70,000 women are diagnosed with uterine cancer each year, and the rate has increased over the past two decades. Survival rates are relatively high compared to other cancers, but drop very quickly when diagnosed late, Kamath explains.

This can cause a false sense of security for GPs, who may not act aggressively at the first sign of symptoms. “But obviously that’s not the right way to think. Really, we should diagnose it as quickly as possible, ”Kamath said. “The most important thing is, perhaps more than other diseases, that we detect this disease at a highly curable stage. “

Kimberly Flynn, who heads several health advocacy groups for people living and working around zero, says the World Trade Center’s health cycle has been bad. She found that the lack of studies led to a lack of longitudinal data, which in turn served to justify excluding uterine cancer from the program.

When the federal committee agreed to consider his addition, Flynn began with his two-decade-long contact list to identify survivors and first responders diagnosed with cancer. uterine cancer but was denied coverage. Of the eight cases she found, four were on the program’s radar. One in eight people have died from cancer of the uterus.

Kaminski’s cancer is in remission after a hysterectomy and chemotherapy.

“We don’t need research to tell us that there are health disparities,” Flynn said at a recent advisory committee meeting. “We need research to correct existing health inequalities. “

KHN (Kaiser Health News) is a national newsroom specializing in producing in-depth coverage of health issues. Along with policy analysis and exploration, KHN is one of the three main activities of KFF (Kaiser Family Foundation). The KFF is a premier nonprofit organization to provide information on health issues to the nation.

https://www.thedailybeast.com/overlooked-uterine-cancer-patients-get-one-step-closer-to-911-benefits?source=articles&via=rss Open uterine cancer patients get one step closer to 9/11 benefits

This article is automatically translated from the original language into your language. Do not hesitate to let us know if it contains translation errors so that we will seek to correct them as soon as possible.

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