“As if my body was sticking together with chewing gum.” Patients recount their suffering from the rare Ehlers-Danlos Syndrome

Ehlers-Danlos syndrome (EDS) is a group of genetic disorders that affect the body’s connective tissue, resulting in a wide range of debilitating symptoms, including brittle joints, digestive problems, and difficulties regulating heart rate and blood pressure. One patient says, “We were born with this (syndrome) and we will never be free from it while we are alive.” Hear the stories of 5 people living with this syndrome.