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Pregnancy is often portrayed as a time of glowing health, but for many women, it brings a host of uncomfortable and sometimes debilitating symptoms. Whereas morning sickness and fatigue are widely discussed, a lesser-known condition – anterior cutaneous nerve entrapment syndrome (ACNES) – can cause significant pain and disruption during pregnancy. One woman’s journey to diagnosis highlights the challenges of recognizing and treating this rare complication.
The experience, shared anonymously, began in the second trimester, around 19 weeks of gestation. What started as muscle tension under the breastbone on the right side quickly escalated into a persistent discomfort triggered by even moderate activity. Standing for extended periods or walking for more than 90 minutes brought on a tightening sensation, relieved only by lying down. Despite initial concerns about her ribcage, the pain persisted, impacting her daily life and leading to a frustrating search for answers.
Initial investigations ruled out common pregnancy complications like pre-eclampsia, confirmed through blood tests evaluating organ function, including the liver and kidneys. While this provided some reassurance about the health of both mother and baby, it left the underlying cause of the pain unexplained. As the pregnancy progressed into the fifth month, the discomfort became increasingly severe, limiting her ability to walk to just 35 minutes and forcing her to switch to full-time remote work to accommodate frequent rest periods. The pain was so intense she found herself constantly pressing on her abdomen for relief.
The woman’s search for a diagnosis led her to consultations with osteopaths and physiotherapists, but these treatments offered little improvement. Initial theories, including the possibility that the baby’s position was contributing to the discomfort, proved incorrect when the baby moved out of a transverse position. Growing anxiety led to fears of a more serious underlying condition, such as a tumor, but further testing yielded no concerning results. Eventually, she received a preliminary diagnosis of neuropathic pain, offering some validation but no immediate solution.
A turning point came with independent research into ACNES, a condition where a nerve in the chest wall becomes compressed, often during pregnancy. She discovered a video featuring a Parisian physiotherapist that precisely described her symptoms, including the sharp, shooting pains, the sensitivity to touch (allodynia – where skin feels like sandpaper) and the exacerbation of pain with sneezing, coughing, or laughing. The physiotherapist explained that ACNES is relatively benign but often misdiagnosed due to a lack of awareness. A key diagnostic test, the Carnett test (palpation at the painful point), had not been performed.
Studies suggest that ACNES related to pregnancy can often resolve after childbirth, and treatment options are available for persistent cases. However, the woman encountered resistance when she suggested a local anesthetic injection to her hospital, with concerns raised about its suitability during pregnancy. A pain management specialist incorrectly attributed her symptoms to acid reflux, dismissing her concerns and the potential ACNES diagnosis.
Despite the ongoing pain, the woman reports a shift in her perception of the discomfort since learning about ACNES. She is now managing her symptoms with rest and topical lidocaine patches, as recommended by her general practitioner, emphasizing the importance of avoiding self-medication during pregnancy. With her due date approaching in five weeks, she remains hopeful for a resolution and the opportunity to meet her daughter.
This case underscores the importance of considering less common diagnoses, even during pregnancy, and the potential benefits of patient-led research. While ACNES is not widely recognized, increased awareness among healthcare professionals could lead to earlier diagnosis and more effective management of this debilitating condition.
Disclaimer: This article provides informational content about health and medicine and is not a substitute for professional medical advice. Always consult with a qualified healthcare provider for diagnosis and treatment of any medical condition.
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