(COLORADO SPRINGS, Colorado) – A girl with a rare form of epilepsy, whose recovery inspired the name of a medicinal marijuana oil that was used to treat families of children with health problems similar to Colorado, has died from her mother, according to the nonprofit organization founded.
For Charlotte Figi, 13, the Facebook announcement of the nonprofit group Realm of Caring did not indicate a cause of death.
However, Charlotte was recently hospitalized in a post on her mother’s Facebook page because she hadn’t recovered from a virus that had infected her entire family.
Calls to relatives and the foundation for further details and whether Charlotte had the coronavirus were not immediately returned on Wednesday.
“Some trips are long and boring, others are short and moving and are supposed to revolutionize the world. This was the path this little girl took with a catastrophic form of epilepsy called Dravet syndrome, ”said Realm of Caring’s announcement.
At the age of 5, Charlotte suffered up to 300 grand mal seizures per week, used a wheelchair, repeatedly got cardiac arrest and could hardly speak.
With doctors of ideas, her mother Paige Figi started calling medical marijuana stores. Most of her symptoms went away after she started taking an oil infused with a low-THC marijuana strain, the psychoactive ingredient in the drug.
The name of the oil was changed to Charlotte’s web.
Their success led other families with children who had seizures to move to Colorado Springs before marijuana was further legalized in the United States.