2023-10-23 13:05:02
Madrid, Oct 23 (EFE).- The Platform of Patient Organizations (POP) has launched the “CROBI” project, a tool to measure the degree of psychosocial well-being of people with chronic diseases and learn how these pathologies impact your day to day.
The POP, which brings together 36 patient organizations at the state level, with more than 1,796 associated organizations, has presented this tool during a meeting organized together with the EFE Agency, in which patients and professionals have participated to delve into this new project and address the situation of chronic patients.
In Spain there are 22 million chronic patients, which represents 54 percent of the population, and 89.5 percent are over 65 years old, but in addition, 28% of these elderly people live alone and up to 43 percent of those who find themselves in this situation feel bad regarding it.
And the majority of people with chronic diseases recognize that their illness transforms their social, family and emotional life, in one way or another, and reduces their quality of life, as experts have stated.
In this way, the POP has promoted CROBI, the first scale for self-assessment of the well-being of these patients in two dimensions: psychological, effective and emotional on the one hand, and socio-occupational, on the other.
In fact, the name CROBI is an acronym for chronicity and well-being.
It is an anonymous questionnaire that includes 24 questions that reflect some experiences and feelings that other people with chronic illnesses have had, so that the user has to answer each of them regarding the degree to which they fit their situation. particular experience.
After completing the questionnaire, the patient can download the results and they are presented on a scale from 0 to 100, this being the maximum well-being.
The general director of the POP, Pedro Carrascal, assured during the meeting that the tool allows the reality of chronicity to emerge in the face of the “invisibility” suffered and highlighted that one of the novelties is that the patients themselves have participated in its design. .
For the member of the Andalusian Society of Quality Care, Andrés Fontalba, it is “very interesting” that the emotional situation of these patients is studied since it adds value to their follow-up as well as giving rise to grouping results and conducting research.
In fact, the POP trusts that CROBI, in addition to helping people with chronic pathologies to know how they affect their quality of life, can serve as a standard reference for health professionals and researchers in their observational or quality of life studies. .
That the questionnaire is integrated into the health system is one of the challenges that the tool faces, according to the director of Multiple Sclerosis Spain, Beatriz Martínez de la Cruz, who also considers that it can contribute to patient monitoring in the usual clinical practice since it will give “a current snapshot” of the impact that the disease has on your life.
For his part, the sociologist and member of the technical committee of the “CROBI” project, Alfredo del Campo, has stressed that the usefulness of the tool lies in the fact that the results can provide decision criteria to the leaders of health policies to correct the “defects” and different aspects in the approach to these patients.
The four participants have agreed that it is urgent that the care of chronic patients in Spain changes “profoundly” and improves because it does not adapt to their needs, so that the approach is multidisciplinary and with greater coordination. EFE
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