The Determination and Strength of Javier Pardo Adeva: Living with Kearns-Sayre Syndrome in Spain
2023-12-04 12:49:43 Like every morning, Rocky’s music bursts into the silence of Javi’s room. Javi slowly gets out of bed with measured movements, aware of his body and its limitations. He suffers from Kearns-Sayre syndrome, a rare form of neurodegenerative mitochondrial disease. This disorder affects the mitochondria, responsible for generating energy in cells, leading to … Read more