A critical shortage of bone marrow donors from Māori and Pacific Island communities is prompting urgent calls for increased registration in New Zealand. The New Zealand Bone Marrow Donor Registry is actively seeking donors to facilitate six patients currently awaiting potentially life-saving transplants, highlighting a significant disparity in representation within the global donor pool.
While over 40 million bone marrow donors are registered worldwide, only approximately 6,000 identify as Māori and 3,000 as Pacific Island, according to the New Zealand Bone Marrow Donor Registry. This underrepresentation underscores the importance of ancestry in finding suitable matches, as tissue type is inherited. When relatives are not a match, a donor from the same ethnic background offers the best chance of success.
The need for greater diversity in the registry is deeply personal for many, including Keri Topperwien (Ngāti Awa, Ngāti Porou), who lost her three-year-old son, Chace, to acute myeloid leukemia in 2012. Following her son’s passing, Topperwien and her husband established the Dream Chaser Foundation, a charity dedicated to supporting children battling cancer. She has develop into a vocal advocate for increasing Māori and Pacific Island donor numbers.
“I think people just don’t know about it,” Topperwien explained, noting that awareness is a significant barrier. “Unless it’s intimately in your life, it’s hard to understand… there’s too a lot of old school myths around the process of donating bone marrow, so that can be scary for some people.” She emphasized that advancements in technology have made the donation process far less invasive than many believe.
Bone marrow, crucial for producing blood cells, can be extracted through several methods, including leukapheresis – a process where stem cells are collected from the blood – or through a needle extraction from the pelvic hip bone. Umbilical cord blood is another source of stem cells used in transplants.
Topperwien also acknowledged that cultural beliefs can sometimes discourage participation. “There’s always cultural hesitation, perhaps understanding how it works and you know the sacredness of the body and taking body fluid from yourself to another,” she said. However, she believes framing the process through the lens of whakapapa – genealogy – can be effective. “We usually frame it through whakapapa because if you are matched with someone, then somewhere along the line, your genetic makeup has overlapped or crossed over, so here’s that nice connection. When you start framing it like that and talking to people about the fact that only Māori can save Māori, it takes the layers of fear and uncertainty away and people start to engage with the topic a lot more comfortably.”
The Dream Chaser Foundation actively works to raise awareness about bone marrow donation within these communities. Topperwien stated that her late son remains the driving force behind their efforts. “We know first-hand the desperation of not having a bone marrow match anywhere in the world for our son,” she said. “If we can just save one life, then all the effort is worth it.”
The urgency of the situation is further highlighted by the case of Te Waarakihi Hooper Felise, a nine-year-old boy recently diagnosed with aplastic anaemia. As reported by Teaonews, Te Waarakihi requires a bone marrow transplant, but a fully matched donor has yet to be found. His family is actively appealing for more Māori and Pacific Island individuals to register as potential donors.
The New Zealand Blood Service, which manages the New Zealand Bone Marrow Donor Registry, established the registry specifically to address the smaller donor pool available to Māori and Pacific Islanders. The registry website provides information on how to become a donor and emphasizes the importance of ethnic diversity in improving transplant outcomes.
Looking ahead, continued efforts to raise awareness and address cultural sensitivities will be crucial in expanding the donor pool and providing hope for patients in need of life-saving bone marrow transplants. The New Zealand Bone Marrow Donor Registry will continue its recruitment drives, focusing on engaging with Māori and Pacific Island communities to ensure equitable access to this vital treatment option.
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Disclaimer: This article provides informational content about health and medicine and should not be considered medical advice. Please consult with a qualified healthcare professional for any health concerns or before making any decisions related to your health or treatment.