2023-06-01 23:34:07
It’s the start of Amyotrophic Lateral Sclerosis (ALS) Awareness Month, a neurodegenerative disease that causes muscle paralysis and for which there is no cure yet. Throughout the month of June, fundraising activities will take place to improve the lot of those affected.
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It’s the start of Amyotrophic Lateral Sclerosis (ALS) Awareness Month, a neurodegenerative disease that causes muscle paralysis and for which there is no cure yet.
Throughout the month of June, fundraising activities will take place to improve the lot of those affected.
To date, there are 3,000 Canadians with ALS. Of this number, 600 are in Quebec, including about 30 in Estrie.
Sherbrooke resident Liette Blais is one of them. The life of his whole family completely changed in the spring of 2021, when the diagnosis of amyotrophic lateral sclerosis fell. Like all those affected by this degenerative neurological disease, his condition is gradually deteriorating.
“For more than a year Liette has not spoken and she is fed almost exclusively directly to the stomach, said her spouse, Julien Lachance. What is difficult is to experience repeated bereavements, faculties which leave and which will not return. And also you have to prepare for the start because it is an illness that cannot be cured.
The former Sherbrooke city councilor will act as honorary president of the Walk to End ALS to be held on June 10 around Lac-des-Nations. With the help of an app she can write on, Liette wanted to thank everyone who participated.
“The funds raised will go to research and help people with the disease. With the nine walks organized in the province in June, the objective is to raise $200,000,” indicated Mario Goupil, member of the board of directors of the ALS Society of Quebec.
The latter continues to lead the fight, 14 months after the death of his wife Lisette, carried away by ALS.
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