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Edwards and Miller see patients with expanding Covid-19 every Friday at Rainbow Hospital for Babies and Children. “I’m sure we’re making the hospital system lose money, because one of us only sees five patients a day,” Edwards said. She was speaking between examinations of patients in a room usually used by psychiatrists to watch children through a mirror that allowed them to see the other side without being seen. The room is serene compared to the bright landscapes and woodland cheer that line the walls and ceilings throughout the lobby and corridors of Rainbow Hospital for Babies and Children. Edwards and Miller see their patients wherever they find space available in the hospital ward for specialized care. Edwards also does all of her administrative work herself. Her children know she won’t be home at dinner time most Fridays.
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Edwards and Miller examined their youngest patient in early March, Hunter Renard, who was 4 years old, and had been suffering from Covid-19 for two years. Hunter hid behind a blue chair in the examination room, while his mum Kristen explained how he began to have a high fever every few weeks after the whole family contracted “Covid” early in the epidemic. Hunter wasn’t eating well, telling his mother that the food smelled “disgusting,” and he wasn’t sleeping well. Kristen took her son to a number of hospitals over a period of months, including the Cleveland Clinic, before opening a clinic for expanding Covid-19 at Rainbow Hospital for Babies and Children. “No one knew what he was going through,” Kristen told Edwards and Miller. “It was so frustrating because I didn’t know what to do at that point, no one believed me.”
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Kristen told doctors that Hunter started gaining weight after she started giving him PediaSure, and she didn’t find him playing downstairs at 4 a.m. as soon as she and her husband started giving him a melatonin supplement to help him sleep.
The whole family contracted Covid again in December, and in February his intermittent Hunter fever reached 41C, and he began hallucinating and fantasizing about seeing characters from his favorite video games hanging out on the ceiling. Kristen said it exhausted her.
“I want to assure you that you are not crazy,” Edwards said to Kristen. “I feel like I’ve gone crazy… No one has believed me for a year and a half,” Edwards said, “I believe you.”
Some people in the medical sector believe that extended disease “Covid” is an autoimmune response or that the virus causes nerve damage, but no one knows for sure. Edwards and Miller at Rainbow Hospital for Babies and Children tend to recommend rest and diet changes to their patients. Lincoln Brockmere said the support and guidance he received from his doctors is paying off, he is eating better and back to his pre-Covid weight. Lincoln regained some energy as well, and said eliminating refined sugar from his diet was a “game changer”. He can now walk longer distances, and on good days he can’t resist his urge to take a few shots, but he has to sit back and forth. “That was the most depressing thing,” he said, “because I missed the entire basketball season. I worked hard and it was all for nothing.”
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Basketball wasn’t the only loss the new student suffered in his school and city. Lincoln said he had just started opening up to the students at his school when he fell ill, then was left to watch all the fun his new friends were having on Snapchat. “I really felt lonely,” he recalled.
Lincoln still feels left behind in his studies, but says his mental health improved after his diagnosis: “Because I feel like we know the road is long, I feel better because I know why I’m struggling…and that I can do something about it.”