Chloé, 26, has had narcolepsy since entering sixth grade. “Narcolepsy is a sleep disorder that can affect different things depending on the type of damage,” she explains. The one that is known concerns people who will fall asleep at any time, which is not my case”.
“It’s a bit like a general paralysis”
Narcoleptic with cataplexy, the young woman rather feels a drop in muscle tone: “my body goes off, everything lets go so I fall… but without sinking into unconsciousness. I feel everything, I hear everything. If you open my eyes, I see. It’s really a drop in muscle tone, a bit like paralysis of the body.
“I have a very damaged body because of falls from cataplexy, says Chloé. I don’t feel them coming because there are no warning signs. So I have already suffered more than 25 head injuries, three concussions, dislocations, fractures. Unfortunately, there is no cure for narcolepsy. According to Chloe, “the treatments just help stabilize her and make sure she can live with the disease.”
This article is produced by Brut and hosted by 20 Minutes.