2023-06-13 08:00:02
On the occasion of International Albinism Awareness Day, we are dedicating our show to this rare, hereditary and non-communicable disease. Albinism affects between one in 5,000 and one in 15,000 people in sub-Saharan Africa. Less common in Europe and North America, this disease affects one in 20,000 people there.
Characterized by a lack of melanin in the skin and/or eyes and/or hair, albinism has significant repercussions on the health of sick people. In addition to these physiological consequences, albinism is a factor of multiple discriminations throughout the world. In some communities, the beliefs that are linked to this disease pose a danger to the life and safety of the people concerned.
What support for patients ? How to deconstruct the false beliefs circulating regarding this disease ?
- Professor Smail Hadj-Rabia, dermatologist and geneticist in the dermatology department of the Necker-Enfants Malades hospital group. Founding member of Reference center for genetic diseases with skin expression
- Professor Matthieu Robert, eye surgeon at Necker-Enfants Malades Hospital and professor at Faculty of Medicine of the University of Paris
- Dr Angelique Njeumen, venerologist dermatologist at Laquintinie Hospital from Douala, Cameroon. Censor from SOCADERM (Cameroonian Society of Dermatology)
- Report by Raphaelle Constant
► To go further : on this World Day, Bayard Africa and the Pierre Fabre Foundation join forces by publishing a special issue of Planet I like to read. In this magazine aimed at children aged 5 to 10, the story “Les Olympiades” gives voice to a young Ivorian who testifies regarding her albinism.
Musical programming:
► Lass – Yaco Mome
► Blick Bassy – Bengue
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#International #Albinism #Day
