2024-04-24 06:09:00
[ALS/JD/Cai Lei/Atrophie]In the face of a terminal illness, we still have hope and hope, and we fight until the last moment. Cai Lei, former vice president of JD.com, was diagnosed with amyotrophic lateral sclerosis (commonly known as ALS) five years ago. Since then, he has made several donations to support ALS medical research and has worked hard to fight the disease. disease. Cai Lei was interviewed again a few days ago and revealed that his body had experienced various declines, his tongue and lower lip had also shrunk, and his condition was approaching an advanced stage. Although it was difficult to take care of himself, he still worked late nights and hoped he could support the medical research he had donated to. However, he deplored the fact that the time given to him after the onset of the illness was too long. too short. He said with a smile: “If you give me ten years, I will kill him in a flash.” He also candidly said that now he just hopes his wife “won’t be pessimistic or sad.”
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According to internal media, Cai Lei, the former vice president of JD.com, was diagnosed with ALS in 2019. At the time, he was only 41 years old and decided to promote drug research and try to fight the disease to the end. He used all his connections and resources to initiate ALS medical treatment research, develop and support ALS patients. In the five years since his illness, Cai Lei worked more than 16 hours a day, tried to sell merchandise through live broadcasts, and wrote his autobiography “Believe” to record his experience fighting against terminal illness. Last year he collaborated with him. more than a thousand ALS patients will donate brain tissue and spinal cord tissue for medical research.
Atrophy of the lips and tongue is a recent disease
In January this year, Cai Lei mentioned the latest situation in an interview with domestic media, saying that his spine became curved, his tongue and lower lip shrank, and his breathing began to become short of breath. . for sleeping, swallowing and coughing up sputum. His body muscles declined everywhere, and he had to be tied with a rope and hung on the wall to take a shower. He said frankly that he felt “very close to death.” His wife also said she was prepared for the worst.
Even though the research faces obstacles, Cai Lei remains convinced that the efforts are not in vain: “Last year’s clinical results are equivalent to those of the last ten years, and now the team is becoming more and more strong. if I die, this matter will continue. » Although now, even though life has become difficult to take care of, he still insists on working with his colleagues until late at night every day:
“I thought that if I had to be intubated and tracheostomy later, I wouldn’t suffer. I did my best, so I’ll take the first step.”
I always keep hope, I fight until the last moment
Earlier this year, he and his wife donated a total of 100 million yuan (RMB, about 108 million Hong Kong dollars) in profits from autobiographical royalties and live broadcasts. Cai Lei, who has great difficulty speaking, faced physical limitations and a life sentence that appeared to be a certain period of time. He lamented that the time given to him by this illness was too short. ten years old, he believed he could kill him in an instant.
Despite this, there was still light in his eyes:
“I always look forward to the day I can get rid of ALS before I collapse.”
I hope my wife “won’t be pessimistic or sad.”
Regarding his family, he revealed that his condition has worsened to the point that it is difficult to even speak, which is why he does not want to talk to his mother on the phone. He only advises the other party to watch the live broadcast: “Don.” “, “Watch the live broadcast. “, This is my best state.” Therefore, his mother stayed in the live broadcast room almost every day, and the two talked to each other in the air: “Mom buys some and I place the order.” Additionally, he said his son was extremely intelligent. A month after he started learning Go, he defeated his entire family. his teacher praised him for his great intelligence. Although there wasn’t much interaction between father and son, sometimes his son would come and hug him early in the morning. He believed that he could become an exceptional talent in the future.
Speaking of his wife who took care of him and accompanied him to work, Cai Lei said frankly that after he fell ill, he and his wife continued to argue because of his crazy work. Now she can’t argue anymore. my wife will not be pessimistic or sad. “This is my greatest hope.”
Most ALS patients die within 3 to 5 years
According to the Hong Kong Rare Disease Alliance, the scientific name for ALS is amyotrophic lateral sclerosis (AMD). It is a disease caused by damage to motor neurons. Current scientific research has only shown that this disease could be linked to heredity. linked to environmental toxins, and approximately 10% of ALS patients are caused by heredity.
In terms of prevalence, the ratio of men is higher than that of women, with a ratio of 1.75:1, and the median age of onset is 62.2 years. A very small number of familial genetic patients may develop the disease at a young age. 20-30 years, with an average of 3 to 5 years. Progression to respiratory failure and death. The main symptoms include:
ALS is an incurable disease
Can ALS be cured? According to the Hong Kong Neuromuscular Disease Society, there is currently no cure or effective nerve regeneration method for ALS. Current medical research temporarily suggests two medications, which can slightly slow the progression of the disease through oral and injectable medications. prolong patients’ lives, but neither improve the patient’s quality of life nor symptoms. Doctors can help patients in other ways, such as prescribing medications to treat muscle spasms, drooling, sleep problems, pain and depression, non-invasive breathing support, using breathing tubes. diet or the use of crutches and communication devices, etc. Daily life, relieving the symptoms and inconveniences of daily life.
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