2023-12-07 07:43:10
The story begins with a happy event, June 28, 2022. “An impeccable birth which followed a visit to the pediatrician during which nothing was to report,” says Cindy, Lenzo’s mother. However, the newborn’s family will very quickly find themselves confronted with terrible news. Only a month later, during a check-up that the young mother thought was harmless, the pediatrician diagnosed Lenzo with hypotonia, a medical term designating a lack of muscle tone. The next day, his parents accompanied him to La Timone, where urgent blood tests were taken before being sent to Nice. And that’s where everything changes. Lenzo actually suffers from a very serious and extremely rare neurogenetic disease: infantile spinal muscular atrophy type 1.
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#SalondeProvence #suffering #rare #disease #Lenzo #months #support
