Tragic Loss: Raising Awareness about Meningococcal Meningitis and Purpura Fulminans

2023-07-13 19:00:15

This is the worst drama that parents can know. Laetitia and Benoît, living in Aix-les-Bains in Savoie, lost their two-year-old boy. Yori died of lightning meningitis at Tarare hospital in the Rhône on Sunday June 18.

Nearly a month after his death, his parents have the courage to speak up to warn families about this often misunderstood disease: type Y meningococcal meningitis (or sepsis meningitis) and purpura fulminans, a complication which reveals the dissemination of the bacterium responsible for meningitis throughout the body and which is most often encountered during infection with meningococci.

“At 7:30 a.m. he had a fever and he died at 7:30 p.m., it’s horrible”

Laëtitia, Yori’s mother, wants to testify, to explain the speed and the dangerousness of this disease, recognizable by the red or purple spots on the skin: “We want to do prevention, we very often forget that bacterial meningitis can lead to death and we have had the sad experience of it“. This 43-year-old mother looks back on June 18 when their life changed: “I just want people if they see purple spots on the skin, which look like hickeys, you have to go to the emergency room otherwise there is no chance, you have to move heaven and earthit costs life, it’s 12 hours, 12 ridiculous hours”. “We leave in the morning on vacation and in the evening we bury our son, it’s so violent, I don’t wish that on anyone” says in tears, this mother.

“By not wanting to clog the emergency room, my baby died”

This is the mistake of my life, in the morning he only had a fever and I thought it was not urgent enough to go to the emergency room ” explains Benoît, Yori’s dad. “We tried SOS doctors, on the 15th, in vain, and ruled out emergencies since we were anticipating their response. : Doliprane and return home, do not overcrowd the emergency room“explains the father of the family. There was no other sign than fever and they went on vacation to the ZooParc de Beauval because Yori loved animals. It was on the way that his condition deteriorated very quickly. and that the first tasks appeared as well as the respiratory distress. They then rushed to the nearest emergency room, to the Tarare hospital in the Rhône and it took nearly two hours to confirm the diagnosis which did not immediately explained to the parents. The little boy died at 7:30 p.m.

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This mother from Aix wishes to recall the symptoms of meningitis, even if this Sunday morning, her son only had a fever. These symptoms can also be severe headaches (headaches), intolerance to light (photophobia), nausea or vomiting, stiff neck, gray or mottled complexion, drowsiness.

Late psychological care

These parents from Aix regret a lack of psychological support for them and their two other sons aged 4 and 7, very affected by the sudden death of their little brother. Benoît, this 37-year-old dad, had to announce Yori’s death to his two other sons in the hospital, alone, without the help of a doctor or a psychologist. He has been asking for free psychological support for his family since the death but without success so far.

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Nothing happened, no support, apparently it’s because he died in 69 and we live in 73, that’s what blocked it, it’s crazy“explains this father of a family. “It’s a drifting health system, a lack of resources, health personnel who do extraordinary work are being walked on and it will affect more and more people if savings are still made on health “.

Benoît adds that his two other boys need help and psychological support. “Our 7-year-old son expresses his pain through violence, guilt and suicidal desires and our 4-year-old has absences, it’s very heavy“.

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By dint of struggling, making phone calls, using their contacts, the Aix family obtained a first meeting reimbursed with a psychologist, near their home, by the end of July, more five weeks after Yori’s death.

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