2023-05-15 22:41:24
The 41-year-old man from Campbellton was born with a bilateral kidney defect. After a lifelong fight, he died on February 24 in Saint-Jean following complications.
Joël-Michel had undergone a first transplant as a teenager, but the treatments following this transplant failed. At 24, his doctors had to put him back on a waiting list for an organ transplant.
He was a priority, but since there had already been a transplant, it complicates things because the antibodies are high. So there, it takes a big list, a big pool of population to be able to find a kidney that is compatible
explains his mother, Jeannette Roy.
A bill on presumed consent
In Canada, less than a quarter of the population is registered to donate their organs. Only Nova Scotia has passed a law on presumed consent, meaning that any adult is a potential organ donor unless they indicate their refusal.
This is the kind of legislation the Liberals want to see in New Brunswick. On May 10, Liberal MP Jean-Claude D’Amours returned to the charge by tabling a new version of a bill to this effect tabled in 2021, which, despite the consensus, had not been adopted, by lack of time.
But the support of the progressive-conservatives in power is not won. Last week, House Leader Glen Savoie, who manages the legislative agenda, did not commit to passing this bill quickly. He said he didn’t know of people who had died waiting for a transplant.
House Leader Glen Savoie. (File photo)
Photo: Radio-Canada / Michel Corriveau
« If you can find me an example in New Brunswick of a person who died because an organ donation was not available, let me know. »
The minister said the government needs to make sure it has the infrastructure in place before passing deemed consent legislation.
A grieving family
Jeannette Roy jumped when she heard the minister’s remarks.
Jeannette and Norbert Roy mourn the death of their son Joël at the age of 41 after complications related to kidney problems.
Photo : Radio-Canada
« Did he just say that? Me, my son, if he had had an organ, he would not have died. Me, my son has just died with 18 years of waiting. It’s long! »
She immediately contacted MP Jean-Claude d’Amours and allowed him to tell his story. She hopes things will change soon.
Of course, you have to organize the doctors who can remove the organ and then send it to the right place, but that doesn’t seem to be the problem.
she says.
She points out that transplants do not necessarily have to be done in the patient’s province, but that it is important that more people become donors in order to enlarge the pool of compatibility.
Joël-Michel Roy underwent a first transplant as a teenager, but it failed.
Photo: Radio-Canada / Courtesy Jeannette and Norbert Roy
Ms. Roy fully supports the adoption of a law on presumed consent. According to her, many people are in favor of organ donation, but few take the steps to signal their agreement.
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