2023-10-31 08:00:00
The Patient Organizations Platform (POP) has presented the project CROBIthe first validated scale with which patients with chronic diseases they can measure the impact of his pathology in the psychological, affective, emotional and socio-laboral sphere.
Carina Escobarits president, remembers that “the Emotional problems associated with chronic diseases can result in deterioration of the pathology itself. Detect in time If the patient’s emotional health is deteriorating, it allows the mechanisms to be put into action. assistance necessary to provide support and thus favor their quality of lifetheir psycho-emotional stability and better management of their illness.”
The CROBI project – acronym for CHRONICITY AND WELL-BEING–, developed with the collaboration of Novartisis aimed at those patients who want to know how their illness affects their psychosocial healthalthough the scale can also be used by clinicians as an additional tool for the monitoring of his patients; in the development of studies observational and quality of life, and by administrations to give solution to the needs, both health and social, detected through the project.
But how does it work? Basically it is a anonymous questionnaire of 24 items that allows evaluating the impact of the disease in two dimensions: psychological-affective-emotional y socio-labor. An impact for whose evaluation the Psycho-Social Well-being Index (IBPS), which measures it on a scale from 0 – minimum – to 100 points – maximum, or what is the same, total absence of psychosocial impact derived from the disease.
The questionnaire can be completed at less than 10 minutes and, upon completion, the user you will be able to automatically view your results global and by dimension.
For access the questionnaire click here.
The emotional impact associated with diagnosis of a chronic disease means that patients have a higher risk of developing a mental disorder. In fact, the ‘Study about the emotional impact of chronic illness‘ already revealed that more than half of the patients feel isolated due to their pathology and that around 70% experience depressive symptomscase among others of fatigue, fatiguesadness, sleep problems and apathy.
Furthermore, it is especially relevant that close to a 45% afternoon two or more years in receiving the diagnosis of their pathology. A delay that has a direct impact on the scope educational and/or occupationalas well as in the familysocial life and the evolution of the disease itself.
As Escobar concludes, “the majority of people with chronic illnesses recognize that their illness is transforming their lives.” social, family and emotionalin one way or another, and that this circumstance generates negative emotions that diminish their quality of life. Therefore, the same attention to the psychological or emotional planes than to the physical one.”
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