Pone, ex-rapper of the Fonky Family paralyzed by Charcot's disease, releases a book written with his eyes, his wife Wahiba testifies to their "tremendous pride"

2023-04-18 17:53:19

Paralyzed since 2015 by Charcot’s disease, “Pone”, the ex-rapper of the Marseille rap group Fonky Family has released a book entirely written with his eyes. His wife, Wahiba Gallart, recounts this daily life with the disease.

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Published on 18/04/2023 19:53

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“It is an immense pride”said Tuesday April 18 on franceinfo Wahiba Gallart, wife of Guilhem “Pone” Gallart, ex-rapper of the Marseille rap group Fonky Family paralyzed since 2015 by Charcot’s disease, who released “Un peu plus loin” last week, a book entirely written with his eyes, published by Lattès.

“He has a computer tool, an ocular navigation system that allows him to capture the movement of his eyes. He aims at each letter, which forms words and sentences”I explained to Wahiba. “This software also serves as his voice. Once he has written, he just has to aim at the icon to launch the voice”.

living with the disease

Since the announcement of the diagnosis of his Charcot disease, eight years ago, on April 17, 2015, Pone has started to compose with his eyes again: “At the start, for him, the music was over. He told himself that he would never get there. He tried, he saw that it worked. Now he does everything with it”.

Wahiba Shortst also testifies to the family life hit by the disease: “We live it very strangely and very normally. We tell ourselves that it’s exceptional, what we live. It’s a life that is very framed. We have to anticipate everything. But now for us, it’s life When we see what his life course is before his illness, we say to ourselves what his life could have been like after his illness and what we did with it.