2023-12-25 17:01:24
Stéphanie Barre was diagnosed at 45 and showed exemplary courage in the face of the disease. – Photos: Oise Hebdo.
The mParkinson’s Aladie affects some 270,000 people in France. Augustin Lepeu, director of the Petits-fils de l’Oise company, and Léa Bérenguer, director of the Senlis agency, therefore had the idea of inviting home help from the three agencies to a conference on this disease. This was held on Tuesday, December 19, in the premises of the EHPAD (accommodation establishment for dependent elderly people) in the Aunette gardens in Chamant.
Entrusted to the association’s branch France-Parkinson Oisethis meeting aimed to make agency stakeholders better aware of the effects of this degenerative disease which affects many people in France.
She must undergo rigorous treatment
After describing the symptoms of the disease, Yves Bouchoule, delegate of France-Parkinson in Oise, gave the floor to his deputy Stéphanie Barré, diagnosed two years ago, at 45 years old. “I have rigorous treatment which requires me to take around fifteen medications during the day, one dose every three hours,” she breathes, describing a daily life sometimes made up of panic attacks or panic attacks. hallucinations. “The most difficult thing is the lack of sleep,” she reveals, lamenting that melatonin, which is prescribed in this case, is no longer reimbursed.
“I advise those accompanying those affected to take into account the times of the day when they can intervene most effectively. In the case of early morning awakening, care can be much more difficult depending on the time the treatment is taken,” she explains. To demonstrate her point, she sits facing the audience and shows a sideways tremor. “You see, in 45 minutes, it will be gone when the dopamine I just took has taken effect,” she emphasizes. Stéphanie Barré has high hopes for the research carried out in the expert Parkinson’s centers in Lille, Amiens and Paris. “We should see things more clearly in 2024,” she enthuses with a big smile.
Not always a hereditary form
Her illness forced her to give up her job. She worked in the delicatessen sector and suffered a major depression from which she emerged when her neurologist explained to her that it did not have a hereditary form and that her children would not be affected. With an average age of diagnosis of over 55, Stéphanie falls into the category of young patients. She talks about how other people’s views are sometimes difficult to bear. “People sometimes think we drank,” she laments.
Augustin Lepeu, Yvess Bouchoule, Stéphanie Barré and Léa Bérenguer organized this conference to raise awareness of a disease whose effects are multiple.
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